Frequently Asked Questions
OutreachPro allows users to create customizable outreach materials to help educate, recruit, and raise awareness about Alzheimer’s and related dementias clinical research. This includes materials promoting new and ongoing Alzheimer’s and related dementias studies.
Customizing materials and setting up an account is free. The only costs you may incur are those associated with printing, publishing, and delivery of materials created through the platform. OutreachPro is designed to help users produce the original/source files for educational and recruitment materials. It also provides some guidance on the best use of materials generated through OutreachPro.
Part of the NIH, The National Institute on Aging (NIA) developed the Outreach Pro site, content, and material templates. To develop the content, NIA conducted literature reviews, environmental scans, listening sessions with stakeholders, focus groups, national surveys, and user testing.
OutreachPro templates have been tested using both qualitative and quantitative methods among high priority audiences featured in the OutreachPro materials. This included a mix of caregivers and individuals at-risk for Alzheimer's disease and related dementias. Audience testing was also organized by health status, ethnicity and language spoken (including English, Spanish, Chinese, Tagalog, and Hindi).
Users can create customizable materials to educate communities both about brain health and clinical studies as well as describe and recruit for a specific study (e.g., study-specific materials). Materials may be generated in a variety of outreach formats such as handouts, brochures, social media images, videos and more.
Images and materials generated through OutreachPro templates are intended for the sole purpose of educating communities about brain health and Alzheimer’s disease and related dementias’ research opportunities and are considered fair use. All other use is prohibited. Materials are subject to users’ IRB processes. Websites are subject to both users’ IRB processes and NIA approval. The public may reproduce without permission information from the National Institute on Aging website, except for documents that state another copyright policy applies to them. More in-depth information can be found on the NIA policies page.
At this time, video customization is not available.
The goal of study-specific materials is to create customized materials for your specific clinical studies. To that end, OutreachPro users will provide vital study information that is useful to potential participants such as the length and goal of study, associated risks and benefits, costs and compensation, study contact information, location(s), etc.
Customized OutreachPro materials can be downloaded from the user’s account (“My Materials”). Users may share this documentation with their IRB. Please note: General IRB materials are not available on OutreachPro. Please consult with your IRB for additional documentation and requirements, as may apply.
To promote your NIA-funded clinical study, OutreachPro provides research teams the ability to create a branded, study specific website (You must have an NIA Study ID.) The platform allows users to gather and input specific information about a study to create a website to assist with their recruitment outreach activities.
OutreachPro websites can be launched ONLY after NIA receives documentation of IRB approval. Once IRB approval documentation is received by NIA, only then will the website be pushed live. IRB submission and approval is the sole responsibility of the grantee. Any future updates made to the site will require documentation of IRB approval prior to being pushed live.
Users enter a unique subdomain for the website. Subdomains may reference the study and/or participating clinic. The subdomain will be followed by “outreachpro.org”. For example: mystudy.outreachpro.org.
Yes. OutreachPro will prompt you to enter your NIA Study ID. This ID will identify the website associated with your study.
After creating an account or logging in, users may access saved materials and studies in their user account (“My Materials”).
Materials are automatically saved to your user account (“My Materials”) and are available for immediate download upon completion of the data entry and materials selection process. Users may preview, edit, and download previously saved materials by clicking on the appropriate icons in the Actions column of “My Materials”.
Navigate to the existing study in “My Materials” and click on the “Study Materials” icon in the Actions column.